Lesley
queen
Registered: 02/20/09
Posts: 100
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| | 10/13/09 at 03:20 PM | Reply with quote | #1 |
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well, 2 spots on my liver, and my lung nodule got bigger...
 I guess tomorrow I find out what we are changing, in terms of chemo...I guess this means Abraxane didnt do much
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nosurrender
benevolent dictator
Registered: 09/07/07
Posts: 6,077
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| | 10/13/09 at 03:39 PM | Reply with quote | #2 |
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Lesley, I am so sorry.
OK- on to something better for you.....
perhaps Xeloda? I did that and it is totally doable. it is pills... no infusion!
I know it kicks major cancer butt.
This sucks, I know. But you have lots of ammo in your arsenal and we are going to get you through this!!!
Love to you,
g
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WE WILL PREVAIL
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Calico
lifetime member
Registered: 03/16/08
Posts: 1,670
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| | 10/13/09 at 04:00 PM | Reply with quote | #3 |
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[[[Lesley]]]
sending you hugs!!!!
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~ There are lies, damned lies and statistics ~ |
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MicheleS
lifetime member
Registered: 02/26/09
Posts: 488
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| | 10/14/09 at 03:48 PM | Reply with quote | #4 |
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{{hugs}}
Listen to Gina... she knows what she's talking about.
{{more hugs}}
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Indigoblue
Queen Blue Sky & Golden Light
Registered: 09/08/07
Posts: 1,516
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| | 10/14/09 at 07:19 PM | Reply with quote | #5 |
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(((Leslie)))
I am in a real quandary concerning CAT Scans, MRI diagnostics, PET Scans. Liver Scans, Ultrasound evaluations, and who the heck is finalizing or making a medical analysis from these expensive tests. It is presumed...and in my case, the discovery was that apples, oranges, slip on a banana peel, why? Spots or no spots? Calcifications, or lesion? Tumor Activity or Scar Tissue? Why am I told not to worry, when a CAT Scan found a "possible" lesion, oh, "people have emerging lesions on their Pituitary Glands in the Brain all the time, and it is nothing", or, "the nodule in your breast is unchanged, not to worry.", but, but, but.."why is it there, what is it?"...and the liver...why have no scans been performed? "Don't worry, be happy"...
I sometimes feel like I should not be posting on Club Mets, since it's not something I have been diagnosed with, at present. On-the-other-hand, it serves to warn me about the imaging and tests which my unfortunate experience with present Oncologists have failed to give or even bother to question.
Forgive my intrusion, please. You are dear to me, and this news is alarming, however, you have some brilliant minds who will help to guide the way.
Sending lots of prayers, (((hugs))) and fairy kisses...
Be well, and soon!
Love,
Indi
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ChrissieD
goddess
Registered: 02/02/09
Posts: 148
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| | 10/14/09 at 08:32 PM | Reply with quote | #6 |
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Lesley, I am so sorry. I will continue to hold you in my prayers. |
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lizws
Friendship Goddess
Registered: 09/07/07
Posts: 1,408
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| | 10/14/09 at 09:37 PM | Reply with quote | #7 |
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Lesley,
Well crummy buttons. Holding you closely in my prayers.
Liz
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"I can be changed by what happens to me. But I refuse to be reduced by it!" - Maya Angelou |
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k4katz
lifetime member
Registered: 11/14/07
Posts: 791
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| | 10/15/09 at 06:41 AM | Reply with quote | #8 |
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Lesley,
I am sorry to hear that. You must be feeling disappointment, and fear, and a hundred other things. I will keep you in my prayers for sure. There are a ton of options, as Gina mentioned, and hopefully soon you will find the one that works for you!
Sending warm thoughts and positive energy!
*Hugs*
Kristin
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http://www.dichroicglassmusic.com |
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Limner
Pathfinder
Registered: 10/20/08
Posts: 537
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| | 10/15/09 at 09:17 PM | Reply with quote | #9 |
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Lesley - Gird your loins and know there are many ways to turn these reports into victories. I find reading Edge's pearls of wisdom very positive. Love, Mary
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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe |
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csp
Moderator
Registered: 09/07/07
Posts: 1,720
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| | 10/15/09 at 09:24 PM | Reply with quote | #10 |
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Lesley,
So sorry to hear that the med was not working. I am thinking of you. How did it go today .
Love,
Carrie
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ChrissieD
goddess
Registered: 02/02/09
Posts: 148
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| | 10/15/09 at 10:54 PM | Reply with quote | #11 |
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Hi lesley,
How did it go with your doc? Did you get a new plan for attack? You are in my thoughts and prayers.
Hugs,
Chrissie
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Lesley
queen
Registered: 02/20/09
Posts: 100
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| | 10/15/09 at 11:02 PM | Reply with quote | #12 |
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we are adding Xeloda to the mix, then she wants to scan me in a couple of months. She did ask my input...and I agreed that I thought Xeloda sounded good...she thinks perhaps Abraxane did hold it off somewhat, since the spots are just spots and the nodule just is more pronounced |
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MicheleS
lifetime member
Registered: 02/26/09
Posts: 488
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| | 10/16/09 at 01:20 PM | Reply with quote | #13 |
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SO, are you going to continue Abraxane? Are you on Avastin? What about the PARP trial? Can you get into that?
Been thinking about you lots. {{hugs}}
Michele
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Calico
lifetime member
Registered: 03/16/08
Posts: 1,670
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| | 10/16/09 at 09:23 PM | Reply with quote | #14 |
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Lesley,
continuing sending you prayers and hoping the add on of Xeloda will kick cancer butt!!!!
Hugs!!!
__________________
~ There are lies, damned lies and statistics ~ |
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Lesley
queen
Registered: 02/20/09
Posts: 100
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| | 10/16/09 at 09:46 PM | Reply with quote | #15 |
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well, I am now on Abraxane, Avastin, Xeloda and Zometa...
she did mention the PARP, but I think I might have to go to UCLA for that, which is doable, thats near where my mom lives.
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csp
Moderator
Registered: 09/07/07
Posts: 1,720
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| | 10/17/09 at 09:31 AM | Reply with quote | #16 |
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Lesley
New battle plan in place... check
Sisters sending prayers and positve thoughts... check
Ready to kick some cancer ass.... check
Lv&Hgs,
Carrie
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nosurrender
benevolent dictator
Registered: 09/07/07
Posts: 6,077
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| | 10/18/09 at 06:44 PM | Reply with quote | #17 |
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Lesley, Ask about adding or switching out one to a platinum drug. They were really talking about them at the conference!
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WE WILL PREVAIL
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Calico
lifetime member
Registered: 03/16/08
Posts: 1,670
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| | 10/23/09 at 10:55 AM | Reply with quote | #18 |
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Lesley,
wondering how you are doing??
Did you decide on the parp?
Sending prayers your way!!!!
__________________
~ There are lies, damned lies and statistics ~ |
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MicheleS
lifetime member
Registered: 02/26/09
Posts: 488
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| | 10/30/09 at 02:34 PM | Reply with quote | #19 |
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Lesley,
I think about you everyday. How are you doing???
Lots of {{{hugs}}}
Post when you can!
Michele
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k4katz
lifetime member
Registered: 11/14/07
Posts: 791
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| | 10/31/09 at 09:02 AM | Reply with quote | #20 |
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Hi Lesley,
I am thinking about you as well. Trying to get back into the swing of things after being out with the flu for a week! Anyway, I hope your new plan is in place and is kicking some cancer butt.
*Hugs*
Kristin
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