ShirleyHughes
Wild Woman
Registered: 02/24/08
Posts: 175
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| | 11/01/09 at 02:09 AM | Reply with quote | #6 |
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I never wanted to be scanned regularly. My onc doesn't scan unless one has symptoms. Well, I got scanned. I was complaining about my LE arm. She (my onc) decided to do a CT scan because I had a large tumor and positive nodes. She was being quite cautious. Before leaving the clinic (I go to Duke..a little over two hour drive when dh is driving) she also wanted me to have some blood work done. I did that, but wished I had kept my mouth shut and not complained about my arm. I get home and there's a message on my answering machine from the onc. Heck, when the doc calls back in a couple of hours and says to call her back because she wanted to go over my blood work with me, ya start sweating...LOL My calcium was a bit elevated. So, she threw in a bone scan and a parathyroid test. I scheduled the scans and blood work for about two weeks after seeing her. Fast forward. Saw the onc the same day as scans and blood work. She doesn't like to wait..neither do I. The parathyroid was fine. My calcium had gone back to normal BUT the CT scan said, highly suspicious for metastatic disease...recommended a bone scan. I believe they said the L1. The bone scan said, very concerning for metastatic disease. I believe that one said T12. We saw the onc. She was surprised and really didn't seem too worried about it. She said it was unusual to see only one spot. We could do a biopsy, but I declined. So, we decided to wait for three months and redo the CT scan. THEN, after coming home and reading the report, chewing on it for a day or so AND finally digesting it I decided I wanted a biopsy. A neuroradiologist did the biopsy on L1. I returned in three days to see my onc. Yep, cancer cells. I need to call her and ask her about the biology (or pathology or whatever you call it) of the tumor..is it still er/pr+ and Her2-.
I had no pain. She wasn't looking for this. She was looking for something to do with my....I don't know. Something to do with the way I felt under and around my arm. She again said she was surprised. She said, You knew. I said, Yes. She said, Sometimes we have a sixth sense.
Now I have to have another CT scan in three months. I have changed from Arimidex to Aromasin. That's how we're treating it for now. Doing scans all the time would drive me crazy. DARN! I guess I'll be doing scans all the time now. Crap!
I wasn't going to tell very many people. But here I am posting about it. I've accepted it (I guess). I haven't really freaked out YET. I think I've said I'm stage IV perhaps once. I do not like that label.
By catching this early (I guess it's early) I don't know if it will make any difference. But, according to you, Edge, it may.
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